The Circle of Kindness Foundation to Support Children with Dangerous and Chronic Illnesses to Buy World's Most Expensive Drug for Six Children with Spinal Atrophy (SMA) – & ndash; Zolgensma. This was reported by the 360 TV channel.
It is noted that at the end of July, when the first application review meeting took place, the Purchase of the drug was only approved for two children. As explained in the fonds, this is due to the uncertainty with the date of the start of the supply of the drug.
Chairman of the Board of Directors of the Circle of Benevolence; Alexander Tkachenko noted that every month is important in the treatment of this disease. According to him, it is irresponsible to prescribe drugs without knowing the date of the start of childbirth.
Currently a contract for the purchase of the drug has been signed.
“ Circle of Kindness & # 39; & # 39; & nbsp; & timid; was established by decree of the President of the Russian Federation on January 5, 2021. The main source of funding & ndash; 2% of the income tax of individuals and organizations, whose income is more than 5 million rubles & nbsp; per year, as well as voluntary donations. As the government recently noted, support from the fund has made it possible to receive expensive treatment for more than 1,000 children.
Earlier, AiF.ru explained why the drug “ Zolgensma '' costs more than 100 million rubles and what other drugs are considered one of the most expensive in the world.